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Let us start with this: Robert F. Kennedy is as qualified to be the Secretary of Health and Human Services as I am to be the President. Given that I am an immigrant on a Green Card, that says a lot. As someone who lives with a couple of handfuls of chronic illnesses—some genetic, some hereditary, and others comorbidities—who has spent almost her entire adult life educating herself on mental and physical illnesses, even educating some health professionals; someone who has done

Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect the skin, joints, and blood vessel walls. Because it is a complex and often misunderstood condition, finding reliable information can be challenging. Fortunately, many online resources provide accurate, up-to-date, and supportive information for patients, caregivers, and healthcare professionals. This post highlights some of what we consider to be the best online platforms and tools to help you

“When you hear the sound of hooves, think horses, not zebras.” This is what medical students are taught. In the medical field, the term "zebra" is used to describe rare diseases or conditions. To avoid misdiagnosing patients with rare illnesses, doctors are trained to assume that the simplest explanation is usually correct. However, this can make it more difficult for those with rare conditions to receive a diagnosis and treatment.